Tuberous Sclerosis affects different people in different ways. This page includes stories from people and families whose lives have been affected by Tuberous Sclerosis. If you have a story to share, please contact us.
|
|
Written by Administrator
|
|
 Melissa was born on 12th May 1994 and was a wonderful, contented baby for the first 9 months. At 9 months of age, the onset of epilepsy led to a diagnosis of Tuberous Sclerosis, with tubers in Melissa's brain, heart and kidneys. Her outlook at 9 months through to 2 years was very positive, with Melissa progressing beyond her peers mentally, as well as singing away to her favourite music to the nearest audience or camera.
|
|
Read more...
|
|
|
Written by Janniffer
|
|
 Nathan, who has Tuberous Sclerosis, loves listening to most music, especially country.
When we heard that Lee Kernaghan was performing in Newcastle we knew we had to take Nathan.
|
|
Read more...
|
|
|
Written by Michael and Amanda Watkins
|
|
 We have two beautiful daughters, Elise, 3 years and Dayna 2 years.
Dayna was diagnosed with Tuberous Sclerosis at 4 months after investigating seizures that had started at 2 months. |
|
Read more...
|
|
|
Written by Dawn
|
|
 Emily is 4yrs and 10mths old. She was diagnosed with TSC when she was about 4mths old, she has multiple tubers in and on her brain and a giant cell tumour in her frontal lobe.
|
|
Read more...
|
|
|
Written by Teena, Ainsley, Jack and Anna
|
|
 We had a proud moment recently when Jack was asked to captain the 10+under Northampton Rams Junior Football team for a game. His chest was puffed and our smiles were wide.
It has been a very long time since we have had contact with ATSS, although we still join up as members every year and receive the Reach Out magazine. We attended two family conferences in 1998 and 1999 and enjoyed meeting and talking with other families who had a child with TSC. |
|
Read more...
|
|
|
|
<< Start < Prev 1 2 Next > End >>
|
| Results 1 - 9 of 10 |
