Tuberous Sclerosis affects different people in different ways. This page includes stories from people and families whose lives have been affected by Tuberous Sclerosis. If you have a story to share, please contact us.
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Written by Administrator
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Lisa and Lachlan Foster share the story of Marley's TSC. |
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Written by Administrator
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Toni's father, Maclolm McLean has written Toni's life story. An edited excerpt was published in the November 2010 edition of Reach Out. We have published the full story here.
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Written by Administrator
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 Melissa was born on 12th May 1994 and was a wonderful, contented baby for the first 9 months. At 9 months of age, the onset of epilepsy led to a diagnosis of Tuberous Sclerosis, with tubers in Melissa's brain, heart and kidneys. Her outlook at 9 months through to 2 years was very positive, with Melissa progressing beyond her peers mentally, as well as singing away to her favourite music to the nearest audience or camera.
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Written by Janniffer
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 Nathan, who has Tuberous Sclerosis, loves listening to most music, especially country.
When we heard that Lee Kernaghan was performing in Newcastle we knew we had to take Nathan.
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Written by Michael and Amanda Watkins
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 We have two beautiful daughters, Elise, 3 years and Dayna 2 years.
Dayna was diagnosed with Tuberous Sclerosis at 4 months after investigating seizures that had started at 2 months. |
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