The Australasian Tuberous Sclerosis Society

Presentation by Epilepsy Action staff member Lisa Todd at the 2007 ATSS conference: Advances in Tuberous Sclerosis: From Pathway to Therapy.

Focuses on Epilepsy Management for people wth Tuberous Sclerosis. Includes information on:

- Status Epilepticus

- Epilepsy Management

- First Aid Principles

- Seizure Management Planning

Dr Chris Kingswood, from Brighton UK, presented at the 2007 ATSS Conference - Advances in Tuberous Sclerosis: From Pathway to Therapy.

Reviews key clinical manifestations of TSC and recommended treatment and management guidelines.

Provides detailed information and images on kidney involvement in Tuberous Sclerosis.

The Herscot Center for TSC at the Massachusetts General Hospital has built a comprehensive site, Living with TSC. This includes detailed information on medical aspects of TSC throughout a TSC person's lifetime, videos from medical professionals at the centre as well as stories from families and individuals.

Visit the site.

At the 2004 ATSS Family Weekend we spent some time discussing siblings of people with TSC. Read on for an article related to this area. This article was printed in the March edition of Reachout, the Journal of The Australasian Tuberous Sclerosis Society.