The Australasian Tuberous Sclerosis Society

Thanks to all who came along to The Children's Hospital at Westmead on Sunday 10th August. There were a number of new TSC families that joined existing members to hear from some great speakers:

• Dr Merideth Wilson, Clinical Geneticist, explained the role a clinical geneticist through diagnosis and management of TSC
• Dr Richard Webster, Neurologist, reviewed the major neurological features of TSC and the latest research into new treatment
• Dr Maya Chopra, Genetics Fellow, brough us all up to date on the basic and applied research that is happenning around the world, including the work done through the TSC clinic at Sydney Children's and Westmead Children's Hospitals

The day also included the ATSS Annual General Meeting and a great session to get some input into the ATSS Strategic Plan.

 Click on 'Read More' for more photos and information.

The day will consist of the Annual General Meeting (AGM) and the following speakers:

 Dr Meredith Wilson, Clinical Geneticist, Westmead Children’s Hospital

Dr Richard Webster, Neurologist, Westmead Children’s Hospital

Dr Maya Chopra, Genetics Fellow, Sydney Children’s Hospital

There will aslo be oportunities to connect with other TSC families. The full program is here.

Sunday, 10th August 2008, 9:00am - 3:30pm

Doreen Dew Lecture Theatre, Level 4, Westmead Children's Hospital

Hawkesbury Rd, Westmead NSW

Cost: $25 per person, this is a contribution towards lunch, morning and afternoon tea

To register: Please print and fill out the Registration form.

Congratulations Camperdown! A Day To Remember

As there are not many TSC affected families in the Western District of Victoria, Lily Kerr & family decided to use the Annual TSC Picnic Day as a fundraising opportunity, to raise much-needed funds for the Genetic Diagnostic Laboratory recently opened by SEALS, in association with The Sydney Children's Hospital at Randwick.

The Picnic day, held on Sunday November 25, 2007 at the Camperdown Racecourse (Victoria), was a huge success, attended by around 400 people who brought along their picnic lunch and enjoyed an afternoon of music provided by local talent. A jumping castle, merry-go-round, train rides and face painting kept the children entertained and the jolly old man in red also took some time out of his busy schedule to pay a visit!

In the coming week, more information about the conference will be posted on this site. This will include materials from the sessions - in case you were unable to attend or didn't take all the information down!

The ATSS Committee would like to thank:

• Her Excellency, Professor Marie Bashir, Governor of New South Wales, for opening and attending the conference on Saturday Morning
• The Sydney Children's Hospital, particularly Drs David Mowat and John Lawson for their enthusiasm and energy in both the planning for the conference and on the weekend itself
• All ivnited speakers, particularly Prof David Franz and Dr Chris Kingswood
• All attendees for taking the time to travel to Sydney and share their own TSC experiences with others