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The day will consist of the Annual General Meeting (AGM) and the following speakers: Dr Meredith Wilson, Clinical Geneticist, Westmead Children’s Hospital Dr Richard Webster, Neurologist, Westmead Children’s Hospital Dr Maya Chopra, Genetics Fellow, Sydney Children’s Hospital
There will aslo be oportunities to connect with other TSC families. The full program is here. Sunday, 10th August 2008, 9:00am - 3:30pm Doreen Dew Lecture Theatre, Level 4, Westmead Children's Hospital Hawkesbury Rd, Westmead NSW Cost: $25 per person, this is a contribution towards lunch, morning and afternoon tea To register: Please print and fill out the Registration form. |
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Congratulations Camperdown! A Day To Remember
As there are not many TSC affected families in the Western District of Victoria, Lily Kerr & family decided to use the Annual TSC Picnic Day as a fundraising opportunity, to raise much-needed funds for the Genetic Diagnostic Laboratory recently opened by SEALS, in association with The Sydney Children's Hospital at Randwick. The Picnic day, held on Sunday November 25, 2007 at the Camperdown Racecourse (Victoria), was a huge success, attended by around 400 people who brought along their picnic lunch and enjoyed an afternoon of music provided by local talent. A jumping castle, merry-go-round, train rides and face painting kept the children entertained and the jolly old man in red also took some time out of his busy schedule to pay a visit! |
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The organisers and participants of 'Advances in Tuberous Sclerosis: from pathway to therapy' are now returning to their homes, families and jobs. They spent the weekend at Sydney Children's Hospital learning more about Tuberous Sclerosis and the exciting research into causes and new therapies and models of care that are giving real hope to the lives of TSC affected people around the world.
In the coming week, more information about the conference will be posted on this site. This will include materials from the sessions - in case you were unable to attend or didn't take all the information down!
The ATSS Committee would like to thank:
- Her Excellency, Professor Marie Bashir, Governor of New South Wales, for opening and attending the conference on Saturday Morning
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The Sydney Children's Hospital, particularly Drs David Mowat and John Lawson for their enthusiasm and energy in both the planning for the conference and on the weekend itself
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All ivnited speakers, particularly Prof David Franz and Dr Chris Kingswood
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All attendees for taking the time to travel to Sydney and share their own TSC experiences with others
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 Her Excellency, Professor Marie Bashir, Governor of New South Wales, has accepted ATSS's invitation to open the innagural ATSS Scientific and Family conference. The Governor will address the combined conference attendees on Saturday, 3rd November at The Children's Hosptial, Randwick.
Professor Bashir, the first woman to be appointed Governor of NSW, took up her office on 1 March 2001. Prof Bashir has a diverse background in medicine. Before her appointment as Governor, Prof Bashir taught at the Universities of Sydney and NSW, increasingly working with children's services, psychiatry and mental health services, and indigenous health programs. Other conference updates: The conference dinner, on 3rd November, will be held at the Bondi Icebergs Club, with a stunning view of one of Sydney's most recognised locations. Registration is still open. Please contact ATSS by phone as soon as possible if you are planning to attend the family conference and have not registered
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