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Sunday November 7 will see the successful Top of Mind Symposium come to Brisbane. ATSS will again be organising a TSC stream within this day. The Top of Mind is a one day symposium for parents/carers of an infant, child or teenager with epilepsy.
There will be major presentations on issues of generic medications, epilepsy and childhood, employment and effects of epilepsy and medication on learning and behaviour and much more by key speakers, including neurologists and other specialists in epilepsy.
The format will include an opening and morning plenary session followed by specialised streams:
- Parenting infants and children
- Parenting teens
- Tuberous sclerosis complex
with a final afternoon plenary session. There will also be an exhibition of products and services that are of benefit to people with epilepsy and/or carers.
For more information, please see the Epilepsy Action website here.
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The annual ATSS picnic day is on again. This year events will be held on Sunday May 16th in Sydney, Perth, Geelong (Melbourne), Brisbane and Cairns.
The events are a great chance to meet or re-connect with other TSC families in your area. Please click on 'Read More' for more information. Make sure you RSVP to the relevant Regional Co-ordinator.
Update: The Melbourne (Geelong) event is now cancelled due to lack of RSVPs. Please make sure you contact the regional co-ordinator listed below if you plan to attend any of the events! |
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Read more...
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The 2010 ATSS Seminar Day and AGM are to be held on Sunday August 22 at Sydney Children’s Hospital, Randwick. The programme, is available here. Topics include genetics, neurology, Epilepsy and its impact on learning and a session on Caring for the Carer. Speakers and topics have been selected to be of interest to families that are new to TSC as well as those who have attended many similar events in the past.
The Annual General Meeting will also be held on this day. The revised ATSS Constitution will be presented for acceptance by the members and nominations and elections for positions on the ATSS Committee will be conducted.
Every TSC affected family is invited to attend. The Seminar Days provide an opportunity to:
- meet others affected by TSC
- learn from experts
- relax in the knowledge that other people understand and live a similar life to you
- have a day free of caring
- know that medical services for TSC affected people are improving
- understand that worldwide research is being conducted into many aspects of TSC.
Please complete the Registration form and start making your travel arrangements. |
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The Association of Genetic Support of Australasia (AGSA) are running the 1st Annual Adult Siblings Group in Surry Hills, Sydney. The event will be held on Sunday 18th April 2010 and is zero cost.
Chiu Lau from AGSA says that the event will be a kick-off meeting and attendees will be able to voice their opinion on what support would benefit them. Maybe this would be social events or more opportunities to hear from other adult siblings.
Clare Pinkerton will be attending from ATSS, so anyone attending won't be alone in their TSC experience!
RSVPs are essential. Please see the flyer for more information.
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