The Australasian Tuberous Sclerosis Society

Three of the most popular speakers from the 2011 ATSS Family Conference can now be seen and heard in your living room! Order the DVD of the recordings from the recent Family Conference. The DVD comes complete with printed slides from the presentations.

The three speakers are:

• Dr Vicky Whittemore: From Genes to Therapies, describes the research on TSC completed already and future research directions that will take us closer to a cure. As one attendee wrote: "Wonderfully warm, insightful, intelligent and relevant"
• Dr Sean Kennedy: Kidney Involvement in TSC, provides an overview of the renal manifestations of Tuberous Sclerosis as well as recommended surveillence and treatment. Feedback for Sean included "Summarised very well and presentation was easy to understand".
• Dr Petrus de Vries: Behaviour, Learning and Psychological Aspects of TSC, disects these various aspects in a very entertaining and insightful lecture. And some, of many, glowing comments from a conference attendee "Very entertaining, informative, Petrus made something very complex easier to understand", "Very relevant to our intellectually normal son", "Worth the trip (to Sydney) for this session"

President's Report, Treasurer's Report, Membership Report

Balance Sheet

Profit and Loss Statement

2011 has been a very successful year for ATSS. Highlights include reaching our fundraising goal for Topical Rapamycin Cream Research and a successful family and medical conference in Sydney. Plans for 2012 include development of an online resource directory for TSC families and educational events in Brisbane, Melbourne and Sydney. This is on top of regular activities such as producing the journal Reach Out and providing phone and email support to families affected by TSC.

All of this work requires money. ATSS receives no regular funding and relies on donations to cover operating costs.

The good news is that this Christmas, there are several ways for you and your loved ones to help.

• Make a donation directly to ATSS. Donate online or print this form to post.
• Include a donation form in your christmas cards to encourage your friends and family to contribute to ATSS
• Send a donation e-card in lieu of gifts this Christmas
• Create a donation Kris Kringle page for your workplace in lieu of gifts

All donations $2 and over are tax deductible. Thank you for your support and Merry Christmas!

Channel 9 is covering a story about Tuberous Sclerosis Complex (TSC) and Everolimus. It profiles Deb Duffy and her son Luke - Luke is taking Everolimus to treat his SEGA, a potentially life-threatening brain tumor caused by TSC.

If you watched this story and would like to help support families with TSC, please donate now or sign up to be a supporter of ATSS here. To find out more about TSC and see more stories of people affected, watch our DVD.

This summary has been written by Les Cope, whose son Adam has TSC. Read on for more information on what the NDIS is and what you can do to help.

While not everyone who has TSC has a disability, the whole TSC community can participate in this grass-roots campaign to help improve the services to all Australians with a disability, including those with TSC.