The Australasian Tuberous Sclerosis Society

I have TSC, but I am mildly affected. I was diagnosed when I was 26.

After I was diagnosed with Tuberous Sclerosis I was informed by a doctor that there may be a support group in Australia. After a few phone calls I was given the phone number of Lynn Wilson and rang her. This was in 1995.

I am now a committee member, the editor of Reach Out and am involved in conferences and picnics, sharing information with others.

Tuberous Sclerosis has never caused any serious complications for me. I have some skin markings, but never worried much about them. After I was diagnosed I had some tests, which indicated some calcifications in my brain, but they do not affect the way it functions.