| Clare Pinkerton |
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Lizzie was diagnosed when I was about 3 years old, so Tuberous Sclerosis has always been a part of my life. My mother Sue was on the committee and then was President and I have been on the commitee since 2003. I maintain this website and receive all the emails directed to ATSS. I also get involved in other projects, events and fundraising. Elizabeth is severly affected by TSC and involves her brain, kidneys, lungs and skin. I am particularly interested in the impacts of disability on siblings and the wider family. I would be happy to hear from any siblings of people with TSC.
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My sister Lizzie has Tuberous Sclerosis. I also have three brothers, none of whom has TSC. I work as a consultant in the Banking industry.| < Prev | Next > |
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