2007 Scientific and Family Conference Print E-mail

ImageATSS Inc. in conjunction with Sydney Children’s Hospital Randwick is holding a Health Professionals and Family Conference:

Advances in Tuberous Sclerosis: from Pathway to Therapy

Meeting for Health Professionals:  

3rd November, 2007 

Registration Form

Program

Meeting for Families:

3rd and 4th November, 2007

Registration Form

Program

The Medical Meeting to be held on Sat 3rd November at Sydney Children’s Hospital will highlight the latest developments and treatments for TSC.

The concurrent program will focus on relevant family issues.

On Sun 4th November Drs Kingswood and Franz, with Australian medical specialists will present a series of key lectures and workshops on a variety of aspects of TSC for parents, carers and TSC affected adults.

A Conference Dinner has been organised for the Saturday Evening.

This is an amazing opportunity to attend the first ever specific TSC Medical Conference held in Australia.  The ATSS Committee has worked tirelessly to orchestrate this milestone event for the benefit of all TSC families throughout Australasia.

For more information read on below.

 UPDATE: Information on FACSIA and DADHC Family Assistance Fund to assist families to cover travel costs to the conference has been added below

Presenters for the weekend will include:

Professor David Franz, Paediatric Neurologist, Cincinnati, Children’s Hospital, USA
Dr Chris Kingswood, Consultant Nephrologist, Sussex, Kidney Unit & Head of Research, Tuberous Sclerosis Association,  UK
Dr Ernie Somerville,, Consultant Neurologist, Prince of Wales Hospital
Dr Deborah Yates, Senior Staff, Specialist in Thoracic Medicine, St Vincent’s Hospital
Ms Sue Pinkerton, President, Australasian Tuberous Sclerosis Society Inc
Sydney Children’s Hospital, Randwick:
A/Prof Annie Bye, Paediatric Neurologist
Dr John Lawson, Paediatric Neurologist
Dr Toby Trahair, Paediatric Oncologist
Dr Orli Wargon, Dermatologist
Dr Michael Buckley, Director Molecular Lab, SEALS
Dr David Mowat, Clinical Geneticist

 

Image Saturday, 3rd November: Meeting for Health Professionals 

The scientific meeting is aimed at health care professionals managing individuals and families with Tuberous Sclerosis. The program is intended for: paediatric and adult neurologists and trainees; clinical geneticists, trainees and scientists; nephrologists; dermatologists; thoracic physicians; doctors working in developmental disability; allied health professionals; and other interested health workers.

Highlighting new developments in Tuberous Sclerosis:
• The role of the multidisciplinary clinic - paediatric, transition and adult care
• The mTOR pathway
• TSC 1&2 gene testing in Australia
• Update on drug trials in TSC and related disorders
• Research and future developments
• Management of neurological, renal, dermatological and pulmonary

More information and registration forms are available here:

Health Professionals Meeting brochure

Health Professionals Meeting Program

Image Saturday and Sunday 3rd and 4th November, 2007: Meeting for Families

This 2-day conference is intended for parents, carers, TSC affected adults and other interested parties. The program will cover topics such as the emotional impact of living with a chronic illness, TSC and Autism Spectrum Disorder (ASD) and planning for the future. Sunday's program will give families a unique opportunity to hear about latest developments in TSC research and treatments from medical specialists across the dermotological, neurological, renal and genetic aspects of TSC.

Please note that no child care is being organised as a part of the conference. Accomodation should also be booked in advance as it is Spring Racing Carnival and accommodation will be at a premium if left late.

More information and registration forms are available here:

Familiy Meeting brochure

Family Meeting Program

 Image

Funding Assistance 

To assist families travelling long distances to the conference, two means of funding are available. For all Australians, FACSIA fudning is available through ATSS and for NSW families, DADHC can also be approached for funds.

1. FACSIA Funding 

A grant from the Department of Families, Community Services and Indigenous Affairs is available to provide financial subsidy to families with disabled members to attend the ATSS Conference. This subsidy could cover travel and /or accommodation expenses. Please ring 1300 733 435 for more information.

2. DADHC Family Assistance Fund 

Do you live in NSW? Do you care for a TSC affected young person under 18?
Would you like financial assistance to attend the ATSS Family Conference in November?


What is the Family Assistance Fund?
The NSW Department of Aging Disability and Home Care (DADHC) established this fund for individual families with disabled young people under 18 years to purchase services or equipment to help care for a child at home.
The Regional Director of Metro North region has suggested that families from NSW could apply through their DADHC regional office for funds to assist the parents to attend the ATSS Family Conference in November at Sydney Children’s Hospital Randwick.

The FAF guidelines suggest that funding could cover, among other things:

  • Services to increase parenting skills, communication and improve family routines in the longer term.
  • Training to improve caring skills
  • Counseling or other forms of personal support for family members, including siblings

Priority will be given to:

  • Families on low to moderate incomes ($62 647 or less)
  • Where the child has multiple or complex medical or behavioural needs,
  • Where the care of the disabled young person is having a significant impact on the wellbeing of their siblings,
  • Families with little or no access to extended family or local support,
  • Families living in geographically isolated areas
  • Families who have not previously received FAF.

How to apply?

Application forms are available from DADHC  website (www.dadhc.nsw.gov.au), your case manager or other DADHC worker.

Contact DADHC Regional /Area offices:

Metro North Region  (02) 8855 4200

Hunter Region (02) 4908 5229

Metro South Region   (02) 9334 3700

Illawarra           (02) 4254 0319

Western Region        1300 134 450

Southern Highlands (02) 6200 7300

Northern Region       1300 364 563 
 
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