| Narelle Kerr |
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Lily has skin markings, brain involvement, epilepsy, visual impairment (left hemianopia) and developmental delay. Lily’s epilepsy is controlled, at this stage, after undergoing Neurosurgery 2 years ago. Lily attends a weekly EI Playgroup, a local 3 year old Kindergarten program and in her spare time has weekly Speech and Occupational Therapy appointments, regular trips to the playground, ED Gym and as much time as possible on the farm with Daddy and Hope! Lily is a delightful, little chatterbox who loves life! After such a bleak, uncertain TSC diagnosis, Lily has surpassed all our expectations and more. We are very proud of her and celebrate each and every one of her achievements, often with a tear in our eye. My work background pre-children was secretarial/administration. I am now a full-time “stay at home” Mum (who is NEVER home) and a casual retail assistant who is dabbling in a little bit of bookwork/accounts in my spare time! I first became involved with the ATSS in 2004 and have been in regular contact with the Committee since Lily’s diagnosis. I attended my first Conference weekend/AGM in August, 2006 and joined the ATSS Committee because I would like to be able to give something back to Sue and her fabulous, hard-working Committee who have been my "guardian angels" since Lily was diagnosed! I am also interested in learning as much as possible about TSC and believe that this is the perfect way to expand my knowledge while meeting some fantastic people and families along the way. In my lifetime, I would like to raise community awareness of TSC. |
I am the wife of Damien; hard-working dairy farmer and devoted Husband and Daddy. Unfortunately, I do not share my Husband’s passion for the dairy industry & spend as little time on the farm as possible!! | < Prev | Next > |
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