| Linda Cameron |
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I first made contact with ATSS when Hayley was 4 months old. I was interested in finding out more about this condition and what I could expect in the future. I joined the committee after attending the Family Conference in August 2006. We have lived with Tuberous Sclerosis for just over 3 years now, and received the official diagnosis when Hayley was 11 days old after we had seen seizure activity shortly after birth. After intensive testing Hayley presented with 4 rhabdomyomas in her heart, and a great deal of tubers in her brain. She was also born with two shagreen patches, this assisted doctors with their early diagnosis. She also now has a great deal of Ash Leaf patches over her legs and torso. Hayley has very low muscle tone, is unable to walk or crawl, is non verbal and developmentally delayed. She is currently taking 3 medications to try and gain seizure control, which we have never really achieved. Hayley is a very happy little girl who brings so much joy to our lives. She attends our local early intervention service weekly, where she has access to physiotherapy and speech services. |
Linda is married to Kevin and has a son Jordan who is 6, and a daughter Hayley who is 3. Hayley has Tuberous Sclerosis.| < Prev |
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